Monday, December 23, 2013

Tuesday, December 10, 2013

I Guess I'm Not Wonderwoman

Maybe if I had the outfit and sparkles...


Last week was my first week on my own.  Cory had to go back to work.  It turns out, I did too much too soon.  I didn't think it would be hard to ask for help because I've depended on others so much this year..but, it's hard to ask for help.  Of course, Cory and my kids helped.  And my friends would've helped if I'd called them.  But, I still tried to jump into basically full mom mode right away and it didn't work so well.  Cory came to my rescue, and a good friend called to arrange some other help.  It's taken me through the weekend and yesterday to recover.  Slow and steady, slow and steady...

I'm experiencing slight symptoms of gvh (graft vs. host), like itchiness and dry mouth.  No big deal; just have to treat symptoms right now and keep an eye on it.

We have enjoyed two snow days.  And making Christmas sugar cookies.

Wednesday, December 4, 2013

Home

Thought it worth mentioning that McKay, Clara, and I made it home.  We are all together again!  We came home the weekend before Thanksgiving. Definitely something to be thankful for.

  Overall, things are going well.  I've been so grateful to do simple things like take my kids to the library, go to the grocery store (and I hate grocery shopping), fill up the car with gas...seemingly mundane things that I haven't done for almost a year.  I'm getting back into wife and mom mode.  Slowly but surely.  It's been a bit of an emotional roller coaster, but Cory is stabilizing me.  I need to find a transplant doctor to follow up with here.  The people and BMT program at Huntsman are amazing. I don't know that I'll find quite as good care here.  They got me through the hardest part; now I just need someone to keep following me.

Latest stats: 100% overall donor blood. 91% donor T-cells. 5% hair recovery.
Progress.