With all that said, we decided to move forward with a bone marrow transplant. We are going to do it at the Huntsman Cancer Institute in Salt Lake City, Utah. I have an appointment to meet with Dr. Paul Shami (at Huntsman) next Wednesday the 19th. I'll fly out to meet with him then return home. Assuming he's also in favor of a transplant being my best bet for a cure, we'll then work to get all of us out there ASAP.
This is a recent email response from Dr. El-Shami:
Hi Janna,
I support your decision to proceed with transplant. I have been on the fence simply because of lack of reliable data to recommend for or against transplant without hesitation. Let's see what the folks at Salt Lake will think. Dr. Kantarjian of MD Anderson also recommended transplant (though yet again a 'wet' recommendation). Let me know if you need any help getting all the records to Utah on time. But it should not be a problem.
Keep me posted.
More as it unfolds.
Prayers for you Janna, Cory and the boys and Clara. We love you and only want the best for all of you!
ReplyDeleteI am so humbled to be your Mom.
ReplyDeletejust getting caught up on these last updates. tears and admiration and love from me to you all tonight. Glad that Huntsman will be the setting. Have a lot of confidence in those doctors and that facility. Wish none of it had to happen. Have been and will continue praying. Love you. So much.
ReplyDeleteGood Luck today! And random advice for eczema, vaseline straight out of the jar right after bath right before bedtime.
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